Comments on: What do people with chronic illness need… https://gregladen.com/blog/2012/11/12/what-do-people-with-chronic-illness-need/ Fri, 16 Nov 2012 03:11:00 +0000 hourly 1 https://wordpress.org/?v=6.4.8 By: digital guerrilla » Blog Archive » Bookmarks for November 14th through November 15th https://gregladen.com/blog/2012/11/12/what-do-people-with-chronic-illness-need/#comment-495942 Fri, 16 Nov 2012 03:11:00 +0000 http://scienceblogs.com/gregladen/?p=14222#comment-495942 […] What do people with chronic illness need… – Greg Laden’s Blog – from » Medicine http://cf-global-posts.example.com […]

]]> By: Marnie https://gregladen.com/blog/2012/11/12/what-do-people-with-chronic-illness-need/#comment-495941 Tue, 13 Nov 2012 23:42:18 +0000 http://scienceblogs.com/gregladen/?p=14222#comment-495941 Great article, thanks for sharing. I don’t actually have any close friends who have this sort of chronic illness, but if it happens, I feel better equipped to respond in a way that’s appreciated.

In a related matter, Crohn’s disease sounds pretty awful.

]]> By: Ann https://gregladen.com/blog/2012/11/12/what-do-people-with-chronic-illness-need/#comment-495940 Tue, 13 Nov 2012 19:46:22 +0000 http://scienceblogs.com/gregladen/?p=14222#comment-495940 The most important don’t make a panic. Yes then people are illness so it isn’t and in any case our close people should have help from us – friends. But that speak about other sources for example Internet. Of course then there are a lot of new medicine sites we must understand their questions of useful for people. Then we have only general information: where, what and etc, it is normal – for example about site http://www.catalog.md . But then speak about different recommendation on other sites, so to be careful!

]]> By: adelady https://gregladen.com/blog/2012/11/12/what-do-people-with-chronic-illness-need/#comment-495939 Tue, 13 Nov 2012 04:28:56 +0000 http://scienceblogs.com/gregladen/?p=14222#comment-495939 That one about the drugs hits home with me. So what if I get addicted to the one and only drug that makes life liveable. I found one once (it was non-addictive anyway)…. and then developed an allergy to the wonderful thing. I was grateful for the 18 months I got out of it, but I really, really regret not having it any more.

But if I could still take it, _and_ even if it was addictive, I’d go on with it regardless. Living a reasonable life would be worth it. Spending half your life in bed and/or worrying about whether you have enough ‘spoons’ to get you through the next few hours is seriously tedious. Even if your condition is more lifestyle threatening than life threatening. It’s not much of a life some days.

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